Tag Archives: team gluten free

ID-100141346

Springtime Celiac Musings

It seems like every 3 to 4 months that I hit a rough patch in which it is challenging to find time to dedicate to writing and posting on this page. Sometimes it’s because of work demands, often it’s because of family demands, and right now it’s multifactorial (work, family, planning for our big upcoming move, brain fog, etc). There are some pretty cool things that I’d like to share with you, though, so here goes:

If you can get your hands on the National Institute of Health’s Medline Plus Magazine, there is a beautifully written article about celiac disease featuring Jennifer Esposito. Although the Spring 2015 issue is not yet up on their website, it should be soon. I tried to take a photo of it with my phone but couldn’t get it to upload properly. This supports that I need professional help with this page :)

I recently found out the Celiac Disease Foundation has one spot available to run the New York City Marathon on November 1, 2015 as part of Team Gluten-Free. I was fortunate to be able to participate last year and it was truly an experience of a life time. For more details please click here.

While perusing the CDF’s website I also came across an article called “Celiac Disease Myths Debunked” which clarifies some of the misinformation that I have seen propagated over and over again on the internet. It reiterates that coffee and corn are safe for those of us with celiac disease.

During one of my recent trips to T.J. Maxx I discovered the Sticky Fingers Bakery line of gluten-free scone mixes. They are super easy to make, taste great, and are made in a dedicated gluten-free facility. It looks like they are available at multiple retailers in the NW states of the U.S. as well as on amazon.com. I am going to add them to my “Products I Like” page soon…and update the rest of that page too. I am always open to new recommendations for products to try as well.

chocolate-chip-gluten-free-scone-mix

Speaking of “Products I Like,” I recently learned through a reader that some of Garnier’s products now contain hydrolyzed wheat protein as an ingredient. Although many experts state that those of us with celiac do not need to avoid gluten in skin and hair products (see #3), I do choose to avoid it in my shampoo as I worry that shampoo may come in contact with my mouth as I am rinsing my hair in the shower. I am also careful to use only gluten free lipsticks as well. My favorite GF lipstick brand is Red Apple and I am currently using a shade called “Audrey.”

Also, I have come across a few interesting gluten/celiac related abstract and journal articles over the last few weeks, including one that reiterates that there is no association between infant feeding practices (i.e. breastfeeding and the timing of gluten introduction) and the risk of celiac disease development. Although my brain is too tired to summarize them for you, here is a list for you so that you can check them out on your own if you’d like. I was able to hear Dr. Benjamin Lebwohl speak in person at the International Celiac Disease Synposium in 2013 and he is one of my celiac “heroes.”

1. Lebwohl B. Celiac Disease and the Forgotten 10 %: The “Silent Minority.” Dig Dis Sci. 2015 Feb 10. [Epub ahead of print]. http://www.ncbi.nlm.nih.gov/pubmed/25875755.

2. Gadoth ANefussy BBleiberg MKlein TArtman IDrory VE. Transglutaminase 6 Antibodies in the Serum of Patients With Amyotrophic Lateral Sclerosis. JAMA Neurol. 2015 Apr 13. doi: 10.1001/jamaneurol.2015.48. [Epub ahead of print]. http://www.ncbi.nlm.nih.gov/pubmed/25867286.

3. Szajewska HShamir RChmielewska APieścik-Lech MAuricchio RIvarsson AKolacek SKoletzko SKorponay-Szabo IMearin MLRibes-Koninckx C,Troncone RPREVENTCD Study Group. Systematic review with meta-analysis: early infant feeding and coeliac disease – update 2015. Aliment Pharmacol Ther. 2015 Mar 26. doi: 10.1111/apt.13163. [Epub ahead of print]. http://www.ncbi.nlm.nih.gov/pubmed/25819114.

I hope you are all doing well and I wish you a happy spring! Please feel free to write about anything you’d like in the comments section. I do moderate comments, but the only ones I do not post are the obscenity-laced ones and spam ones. So far I have had close to 150,000 spam posts since starting this blog 2 years ago. It’s ridiculous.

NYCM14_Sights_004

Recap of Running the NYC Marathon for Team Gluten-Free

I ran in the NYC marathon this past Sunday as part of the Celiac Disease Foundation’s Team Gluten-Free  and it was an incredible experience. It was a beautiful, windy and cool day in New York, and I felt a wide range of emotions as I ran through all 5 boroughs of the city.  As I ran the 26.2 miles I was able to reflect on my life since my celiac diagnosis in 2010, all that I have learned since then, and all of the incredible people who I have met as a result of having celiac disease.

I dedicated the miles that I ran to those who I have encountered with celiac disease, as well as to my family and friends who have loved and supported me these last few years as I have navigated the gluten-free life. I was going to list all of you who I ran for and thought about during the race, but I fear that if I do this that I will inadvertently leave someone out, so please know that you were all in my heart as I ran, and that I am so grateful for your continued support, inspiration, and love.

I am especially thankful for my mom, Phyllis, my oldest daughter, Grace, and my niece, Dara, who accompanied me to NYC for the race, ate GF with me the entire weekend, and met me near the finish line to help me warm up!

NYC

My daughter Grace and I shortly after I crossed the finish line and met up with my family.

Gluten-free “carb loading” was much easier to do in NYC than in other cities that I have traveled to for marathons and half-marathons. Friday afternoon we hit Risoterria on Bleecker St. for a late lunch/early dinner. If you haven’t been there, I promise that the breadsticks alone are a reason to try it out! I actually ran into two of my Team Gluten-Free teammates, Saundra and Toni, at Risoterria, which was a blessing, as we knew that it was going to be nearly impossible to meet up before or after the marathon due to the large number of runners (>50,000). We were able to get a quick photo together too (see below). Outside of this, I was really bad about remembering to take photos the rest of the weekend, so I apologize for the lack of photos.

We met my brother and sister-in-law, and their kids, for lunch on Saturday and ate at  S’Mac in Midtown, gorging on really large portions of (GF) macaroni and cheese. We will definitely return here on future trips to NYC as the prices were good, the service was quick, and I had enough leftovers to eat after I ran the next day. Much thanks to Dana from Celiac Kiddo for the suggestion to eat here.

We dined at Bistango, an Italian restaurant in the Kimberly Hotel, the night before the race, and I continued my carb-loading with GF rigatoni, a caprese salad, lots of GF focaccia bread, and a flourless chocolate cake for dessert. This was by far one of the best meals that I have eaten since my celiac diagnosis in 2010 (and one that I should have taken a photo of).  If you have celiac disease, and are going to be in NYC, please make reservations to eat at Bistango…I will come and meet you!

Our post-race dinner was at Nizza on 9th Ave. I felt 100% comfortable eating safely gluten-free at Nizza, based on reviews from other people with celiac disease, and we had a great time. Since the marathon was finished, I also had no qualms drinking a few Bard’s beers while at Nizza to celebrate. Bard’s is not available where I live in WI, so I always try to take advantage of having it when I am traveling, as it is one of my favorite GF beers.

This weekend was one of the first times since my diagnosis that I have been away from home and eaten all of my meals at restaurants without experiencing symptoms from gluten cross-contamination. Thank you NYC for having so many restaurants for those of us who need to be gluten free for medical reasons! It was truly “carb loading” heaven.

If you are interested in running on Team Gluten-Free next year, please check out the Celiac Disease Foundation’s website in spring 2015 for information on the application process. Thanks again to all who supported me through the process of training for the marathon, especially my husband, Tom, and 4 munchkins. I love you all so much!

TGF

My teammates Saundra, Toni and I during our impromptu meeting at Risotteria.

 

TEAM-gluten-free-FINAL-300x180

Going Running…and I Need Your Help!

I am excited to announce that I will be running this year’s New York City Marathon as a member of the Celiac Disease Foundation’s “Team Gluten-Free.”  Training has been going well and now that I have hit double-digit mileage for my long runs I feel comfortable sharing this with all of you. I vowed to never run another marathon after getting injured in 2013, but I could not pass up the opportunity to run and raise funds for celiac disease. My five teammates and I have each committed to raise $3500 for celiac disease education, research, and advocacy while training for the marathon on November 2nd.

I was able to resume running after a long hiatus following my celiac diagnosis in 2010 and I credit running with helping me to cope with having celiac disease and other autoimmune issues.  Just last month I added a new tab called “Running” to the top of my blog in hopes to be able to connect with other GF runners and to be able to share information. Please check it out if you are a runner and/or are interested in starting to run.

As of this morning I was $1675 away from meeting my fundraising goal.  I am asking for your help in helping me to get to $3500. Over the last few weeks I have reached out to family and friends (a huge thanks to all who have already donated) and I am now reaching out to our celiac community.  The link to my fundraising site can be found here.

Thanks so much in advance for your help and support. I look forward to representing all of us who need to be gluten-free and you will all be in my heart on marathon day. Also, please let me know if you are also planning on running or watching the NYC marathon…I would love to be able to connect in person! I plan to be in NYC from Friday through Monday of the marathon weekend.

I’ll leave you with a few of my favorite running quotes:

“Long distance runner, what you standing there for? Get up, get off, get out the door.” -Grateful Dead, Fire on the Mountain

“I don’t run because I love the feeling of running. I run because it makes me love the feeling of living.” -Bonnie Pfiester

“That’s the greatest thing about running; your greatest runs are rarely measured by racing success. They are moments in time when running allows you to see how wonderful your life is.” -Kara Goucher