Tag Archives: celiac disease and lymphoma

First download from new camera (summer 2013) 325

Two Things

Thanks to another cancelled flight, I am apart from my family for one more night. I am desperate to see them and cannot put into words how much I miss them.

3 weeks ago we drove 1300+ miles to visit with family in Cape Cod and Boston. I flew back home to work a week ago and am flying back to meet them in Boston and then drive home with them (I would never make my husband do a 1350 mile road trip with 4 kids under 8 by himself!)  We are going to drive north into Montreal and then across northern Ontario to get home, which is going to be quite the 1350 mile adventure.

This quiet evening has given me the opportunity to run, read, and to reflect. I am grateful that I have been diagnosed with this disease, even though there are aspects of it that really stink.  If you haven’t read or heard, there was an article just published in the Annals of Internal Medicine which affirms that those with untreated Celiac Disease have a much higher risk of lymphoma (cancer) than the general population.  If you haven’t read the article, I encourage you to read this summary. I am glad that I am being treated with the gluten free diet and that I have come to the realization that I needed to make my entire household gluten free in order for my intestines to heal and for my symptoms to resolve. I am thankful for all of you who I have “met” and connected with through this blog over the last 8 months.  I am thankful that this disease has caused me to prioritize the nutrition of my family. If learning that untreated Celiac Disease causes cancer does not lead my family members, and others, to get tested for Celiac Disease, then I do not think that anything will. I want you to get tested because I do not want any of you to get lymphoma, not because I want to make your life harder by having to give up bread!

Over the past month I have had the opportunity to see many family members and friends who I have not seen for a while. I wanted to take this opportunity to thank all of you for being so supportive of my gluten free life and give a few examples of the love I have felt…

Mom: Thank you, thank you, thank you for having a cookout for us when we were visiting in July and having a GF spread for me and the kids (tons of fruit and veggies, tortilla chips, GF hot dog buns, ice cream bars, etc.) It was so wonderful to be able to eat everything at a BBQ without being worried about being sick.

Chan: Thank you for bringing your beautiful kids over and making blueberry mojitos for us to drink, and bringing me my own special crispy rice dessert! I hope that next time we can visit for a bit longer and get more adult time to catch up (and drink more Mojitos!)

Ashleigh: Thanks for introducing me to 2 ingredient (banana and egg pancakes) and for letting me visit with beautiful little Luca.

Carol: Thanks for making kick ass guacamole and buying pistachios galore the week in the Cape.  Thanks also for the adult only time, Zumba class with Bunny, and the re-introduction to Gordon Lightfoot.

Ali: Thank you for making an awesome lunch of chicken and mozzarella caprese salad, my absolute favorite salad, when we came to visit. Thanks also for all of the American Girl stuff for the girls.

Dan: Thanks a bunch for buying me my own stash of Celia beer when we hung out…it’s nice to have a new beer to add into the mix and I was so happy to see that Celia is portrayed as being a healthy female Celiac!

Colleen: Thank you for roasting up all of the leftover veggies for me and for basically feeding my kids for the entire week in the Cape so that I didn’t get sick from preparing their food!

Nana and Pop: Thanks for bringing all of the gluten free food down to the Cape for me, buying me and Claire sweet potatoes, taking care to make sure that the grill was clean before cooking for me on it, and for having an never ending stash of gluten free K cups at your house.

Grace, Tommy, Gabby, and Claire: Thanks for always reminding everyone that gluten makes your mommy sick and for going with me to Captain Frosty’s to get gluten free custard. I cannot wait to hug and squeeze and kiss all of you tomorrow!

Tom: Thank you for supporting me throughout this crazy journey, helping to calm me down when I’m acting a bit crazy (which is just once in a while, right?), and providing unconditional love.  I love you very much!

Happy August everyone! Hope to see some of you at the ICD Symposium in Chicago next month!

celia