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You can run from celiac disease but you can’t hide…

I’ve been off the radar the past few months because we’ve been transitioning AGAIN. We moved from Boston back to my hometown of Cleveland in August, and since that time I’ve been focused on settling into our new home, getting all four of our kiddos adapted to their new school, trying to maintain my sanity, etc. Just like last summer, I ended up taking a much-needed break from reading scientific journals about celiac disease, reading others’ blogs, writing articles, etc. Celiac disease has on my back burner and I sort of thought it was going to stay there.

But, as I’ve been orienting for my new job position at the Cleveland Clinic over this past week, I’ve experienced several signs and reminders that I do indeed belong in this celiac/GF world after all:

1. At my electronic health record/computer training last week I ran into an acquaintance from medical school who I last saw in 2002. We were able to catch up over lunch and it ends up she’s an adult gastroenterologist who just moved to the area–so, I now have a new friend and new GI doctor.

2. Within 5 minutes of sitting in the physician lounge at one of the community hospitals I will be working at I was involved in a conversation about GF dining, learned that one of the MDs who is high up in administration also has celiac disease and that there are several with non-celiac gluten sensitivity on staff.

3. I forgot to request a GF lunch at one of the buffet luncheons during a large orientation session but came to find out that the caterers always prepare 2 or 3 GF plates which are saved in the kitchen for people like me who forget to mention anything ahead of time.

4. The first article that I came across on the Cleveland Clinic wellness center webpage was a synopsis of an article about research about non celiac gluten sensitivity. I learned that there is compelling evidence that gluten ingestion can cause immune system activation and inflammation in individuals who do not have celiac disease (see link). This is the first that I had seen this info published.

5. I logged onto my email and Facebook accounts associated with this page and learned that I have more messages and blog comments to reply to than I can count…which means that, despite my hiatus, people are still finding my page and reading.

And so on and so forth…

I am re-invigorated and ready to plunge into this celiac/NCGS/GF world once again. I hope that you’ll continue to join me on the journey and also visit my new brand new website (more to come in upcoming weeks).

Thank you and Happy Autumn!

15 thoughts on “You can run from celiac disease but you can’t hide…

  1. Laura

    So excited to see you’re in Cleveland now! I also work at Cleveland Clinic as a pediatric pharmacist, and have celiac disease. Maybe we’ll run into each other at some point!

    1. Jess Post author

      Hi Laura,
      I will definitely keep an eye out for you. I’ll be at Main Campus once in a while, but most of the time will be in the NICUs at Fairview and Hillcrest.
      Do you participate in any of the local support groups?
      Thanks for reaching out :)
      Jess

    1. Jess Post author

      Hi Vik!!!

      To this day I cannot figure out why my notifications rarely go out.
      My new web page should be going live soon, and I’m hoping that after it’s live that notifications will go out to all subscribers every time I write a new post. Maybe you could be one of my guinea pigs? How are you doing?

      Jess

      1. Vik

        Much looking forward to your new website. Ands hopefully hearing about your Whole Health Institute experience at some point. Happy to be a guinea pig :-).

    1. Jess Post author

      Thanks so much Christine :) I always have to put this page on the backburner when life gets busy, but it means so much to know that you and others are always there when I return–I feel like you’re all my long-lost celiac/GF family. I hope you are doing well.
      Jess

  2. Amy Ratner

    Hi Jess,
    Good to see you back. Two moves so close together must have been challenging. I’ve also had some changes. We should catch up.
    Get in touch when you aren’t busy.

    Best,
    Amy

    1. Jess Post author

      Hi Amy,
      It’s great to hear from you.
      Yes, 2 moves in just over a year has been difficult, but in the long term will be worth it :)
      I will be in touch once things settle down here a bit, I am looking forward to catching up with you.
      Jess

  3. Patrick

    Hi Jess, welcome back!
    As to item #4 being that I have some arthritis I’ve known for some time now that avoiding wheat, in all it’s forms, reduced my inflammation. I think I originally read it in a study that was done on people’s immune response when consuming fast food such as McD’s. Unfortunately it’s hard, for a non ceiiac, to give up that nice fresh baked bread!
    Looking forward to more from your blog.
    P.

    1. Jess Post author

      Hi Patrick,
      Thank you so much for your kind words. I miss you guys.
      My new page should be up and running in a few days/weeks, I am really excited about it.
      Hope we can catch up in person at some point. Please tell Kathy that I said hello!
      Jess

  4. Renee

    I was just diagnosed with Celiac but was surprised because I had not noticed wheat being the culprit, but I do have sensitivity to many of the things on the histamine list. Without being able to eat gluten or things on the histamine list, do you know of a list of things that CAN be eaten without any trouble? It seems like that list will be much shorter than this one. :((

    1. Learner

      Try a Paleo Diet.

      Many grains have gluten like proteins that can inflame the gut, too. Many celiac also have problems with cow milk products. In my family we have various secondary allergies – corn, quinoa, rice, cow and goat milk, eggs, coffee, and nightshades.

      It’s hard at first, but worth it in the long run. Eat organic meats/wild fish, nuts, seeds, eggs, lots of vegetables, and some fruit, preferably berries. Legumes can be hard to digest.

      An elimination diet can help you identify foods you react to. Cyrex Labs has a cross reactivity panel as well, if you want to test, but food allergy tests aren’t always accurate.

      Good luck!

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