Celiac Awareness Month is already halfway over, which seems mind boggling to me, as I feel like May just began. Since May started we’ve celebrated family birthdays, a First Communion, Mother’s Day, and I ran as part of a 200 mile relay from just south of Boston to Cape Cod. I’ve also worked similar hours to when I was in my medical training. I am ready for things to slow down a little and cannot wait for summer to arrive to spend more time with my kids, travel, go to the beach, etc.
During this past month I have also come across a few resources and books that I thought might be helpful to some of you.
The first is the National Foundation for Celiac Awareness 2014 Celiac Awareness Month Toolkit.
It is full of helpful information that you can share with others including celiac fact sheets, recipes, profiles, blogs and webpages to follow, etc. It also includes information cards to give to relatives who need to be tested and screened for celiac disease. I am planning on sharing it with some of my family members who have finally decided to be tested. You can download the free toolkit PDF here.
The 2nd is the book “Mommy, What is Celiac Disease?” by Katie Chalmers.
This is an excellent resource for teaching children about celiac disease, what gluten actually is, that some patients with celiac disease may have different symptoms than others, and that there are tons of delicious gluten-free foods that kids with celiac disease can eat after diagnosis. My favorite quote is near the end of the book: “So, remember to think positive and look at the sunny side of Celiac. Other than some food, everything else about your life will be just like other kids.” I need to remind myself of this all of the time! Thank you, Katie, for sending me a free copy of your book to review. My children and I have read it many times and it couldn’t have arrived at a more perfect time for us.
The 3rd is Jennifer Esposito’s new book “Jennifer’s Way: My Journey with Celiac Disease—What Doctors Don’t Tell You and How You Can Learn to Live Again.”
In the first part of her book Jennifer tells the story of her lifelong battle with undiagnosed celiac disease. Like Jennifer I had a 20+ year delay in diagnosis, and I was able to relate to many of her experiences. The second part of the book discusses the medical and practical aspects of celiac disease diagnosis. I found chapter 17, titled “After diagnosis: what next?” to be an excellent resource for the newly diagnosed. The last section has some great recipes that I am looking forward to trying, including one for spaghetti squash, kale, and tomato, and one for apple ginger breakfast bars. Jennifer provides inspiration and hope for those of us who have been diagnosed. She also opened a 100% gluten free bakery in New York City last year called Jennifer’s Way, which I look forward to checking out this summer.
Have any of you discovered any new Celiac books or resources recently? If so, please share, as I am always looking for suggestions for books to read, web pages to check out, etc.
I am also still seeking recommendations for gluten-free bakeries in the Cleveland, OH area for my bakery-deprived kids. The last time I was in a bakery in Cleveland it was a gluten-filled one prior to my diagnosis.
Thank you and happy (almost) summer! There will be more on the Celiaction Study later this week…the latest update I received is that they will be recruiting subjects until well into June or July.