Celiac Disease (Out of the Mouths of My Babes)

I am not going to be able to write a new post for a while due to time constraints, but I’d like to share the answers to some questions about Celiac Disease which I recently asked my 7, 5, and 3 year old children. I promised them that I would post the answers from their “interviews.” I did not interview the 1 year old for obvious reasons!

  1. What is Celiac Disease?

3 y.o.: “It’s dumb.”

5 y.o.: “It makes you not eat gluten foods.”

7  y.o.: “If you eat gluten, even by mistake or accident, you get really sick.”

  1. What is gluten?

3 y.o.: “A butt ”(followed by a lot of giggling!)

5 y.o.: “A type of thing that Celiacs cannot eat.”

7 y.o.: “Stuff made out of wheat. Foods with crumbs usually have it.” I am pretty sure that this answer is better than what you would get from the general public if asked the same question.

  1. What foods have gluten?

Collaborative effort:  bread, bagels, vanilla wafers, donuts, frosting and cake, ice cream, pizza, milk, French fries, hamburgers, hot dogs, sausages. Not sure where the milk came from, but they had recently experienced my disappointment on Mother’s Day when we found out that the ice cream at our local (favorite) ice cream shop now contains gluten.  My husband was the recipient of my free Mother’s Day dish.

  1. What foods do you miss?

Collaborative effort: Daddy’s oatmeal (Quaker Instant), Cheezits, pizza bagels, Goldfish crackers, vanilla wafers, ice cream sandwiches. I am truly not sad that they cannot eat these foods anymore.

  1. If you found out you had Celiac Disease, how would you feel?

3 y.o.: “Happy, because I can’t eat gluten anymore.”

5 y.o.: “Sad, because I would miss the gluten.”

7 y.o.: “Kind of happy and kind of sad.”  This is most similar to how I felt after diagnosis….

  1. What are your favorite gluten free foods?

Again, a collaborative effort:  Salmon, Annie’s Bunnies, lentils, hamburgers, chocolate, raisins, yogurt, Fruity Pebbles, popcorn, tortilla chips, Cinnamon Chex. I realized that I have not been as good about removing processed foods from our house as I thought I had been!

As life settles down a bit I hope to write about dermatitis herpetiformis, the relationship between Celiac Disease and other autoimmune diseases, non celiac gluten sensitivity, yoga, DNA testing, and much more. Please let me know if you have any topics/areas which you’d like me to try to tackle, and thanks for all of your support.


6 thoughts on “Celiac Disease (Out of the Mouths of My Babes)

  1. Dana

    Great post! I’m laughing about the processed food answer, my daughter and husband both love the Pebbles and sweet Chex, to my dismay.

    1. Jess Post author

      Thanks Dana! Since having to turn the entire household gluten free (minus beer for my husband), I decided not to wage the battle on breakfast cereals. Plus, I can throw together Pebbles squares as a last minute treat in about 3 minutes, so it’s always good to have them around….

  2. Molly (Sprue Story)

    Love it! You’re so right that your kids’ answers put them ahead of the general population in knowledge of gluten and celiac disease. (And it’s also fascinating to see the differences between their answers.) I’ll look forward to more posts in the future. With four kids and a job, it’s no wonder you have a time constraint or two!

    1. Jess Post author

      Thanks Molly! My 3 year old is an outspoken and determined, I think she will make a great future Celiac advocate!

  3. Melinda

    My five year old niece tells me “because it has gluten in it” when she tells me to eat something I can’t have and I tell her no. She also makes a point to tell me “I like gluten and I eat gluten.” I made some GF brownies and she said they were yummy. So now she says that brownies are okay. Silly girl. I love your kids varied responses!!

    1. Jess Post author

      I love that your niece is also celiac and gluten literate…she will be the perfect friend for a child with Celiac Disease!
      We’ve been a GF household for a long time now, and still, every time I bake a new treat, at least one of the kids has to ask, “Is that gluten free Mommy?” Thanks for writing!

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