Happy Sulfite Intolerance

I started to develop chest tightness and wheezing out of the blue in the middle of running with one of my neighbors last spring. I figured that I was out of shape from my pregnancy and the strange sensation slowly resolved as I walked. But then it came back again and again, each time a little bit worse, and sometimes with chest pain. I had a chest CT to evaluate for a pulmonary embolism, since I was at risk due to being postpartum, and it was normal. My chest x-ray was normal too. My heart tests, including an EKG and Echocardiogram, were unremarkable.

One night at work I had to go to the ED because I was having so much difficulty with breathing. I was diagnosed with possible asthma, given albuterol, and sent home with a prescription for a course of oral steroids. Despite the treatment, over the course of the next few weeks my breathing declined. I went from being able to run a 10K to getting winded and short of breath walking across a Target store. I wracked my brain trying to figure out why asthma would just “pop up” suddenly when I was in my mid-thirties….

I had pulmonary function tests and a methacholine challenge, to look for exercise-induced asthma, about 6 weeks after my symptoms first started, and everything was normal (I did not have asthma).

I began to notice that my chest tightness/wheezing would occur shortly after eating. Around this time I was back to work and eating a lot of Apple Cinnamon Chex and KIND bars for both snacks and meal replacements. I began to keep a food journal and discovered that all the the following foods were triggers for my symptoms: Apple Cinnamon Chex, raisins, wine, Juices, KIND bars, eggs, certain bottled waters, balsamic vinegar, shrimp, and anything that contained molasses as an ingredient. I looked at a box of Apple Cinnamon Chex over and over until I saw the words “contains sodium sulfite.” I did a web search for foods that contain sulfites, and I found that ALL of my trigger foods were on the list. I discovered that I had a sulfite intolerance, which is also called a “sulfite allergy.”

FAQ about about sulfites:

What are sulfites?

Sulfites are sulphur-based compounds which are added to foods and supplements as a preservative and/or flavor enhancer. They may also occur naturally. Sulfite sensitive individuals need to avoid all of the following:

  • sulfur dioxide
  • sulfurous acid
  • sodium sulfite, sodium bisulfate and sodium metabisulfate
  • potassium sulfite, potassium bisulfite and postassium metabisulfite

What foods contain sulfites?

  • Baked goods
  • Beverages (including beer, wine, hard cider, fruit juice, vegetable juice, and tea)
  • Bottled lemon and lime juice (concentrates)
  • Condiments
  • Cornstarch
  • Dried fruits
  • Dried and/or processed potatoes
  • Fruit toppings/jams/jellies
  • Gravies
  • Maraschino cherries
  • Molasses
  • Sauerkraut
  • Shrimp
  • Soy
  • Vinegar
  • Wine

The most comprehensive list and forum to check out regarding sulfites is the website:

Sulfites can be present in medications. A lot of generic acetaminophen tablets and other OTC meds contain sodium metabisulfite.  Cornstarch, which is sulfited during processing, is a filler in a lot of pills, and depending on the degree of one’s sulfite sensitivity, may trigger a reaction.

Why do people develop a sulfite intolerance?

We do not know. Most of the scientific papers about sulfite allergies are case reports which were published back in the 1980s (most are in French). Some theories I have come across on the internet regarding why a sulfite intolerance develops include that sufferers may have a partial sulfite oxidase deficiency (a full deficiency is fatal, so perhaps we are “carriers” of the gene and express some symptoms), or that symptoms are due to a deficiency of molybdenum, which is a mineral cofactor in the breakdown of sulfites. Other lines of thought are that the intolerance is related to an environmental exposure of some sort and/or is immune-related (a non-IgE mediated food allergy). In my interactions with others with this problem it seems like a lot of us have either Celiac Disease or gluten sensitivity. But, this is all anecdotal, as there is no research out there (and as far as I know, no one doing any research into the problem of sulfite issues).

How is a sulfite intolerance treated?

The most important thing is the obvious: avoid sulfites! However, this is easier said than done! The only mandatory labeling is for foods and drinks with a lot of sulfites added in, such as wine,  beer, and hard cider. Other foods which contain sulfites, such as dried fruits and KIND bars, do not have mandatory labeling. I have been unable to find any GF, sulfite free beers or hard ciders. The main sulfite free wine makers are Frey and Orleans Hill. I am partial to the Orleans Hill’s Zinfandel, Syrah, and Cabernet, and am slowly getting used to bringing my own bottle with me when I socialize. Many people report a lessening of symptoms while taking Molybdenum. I tried Molybdenum, and, unfortunately, and it did not help me. Other supplements which I have seen recommended include Vitamin B12, Magnesium, and Probiotics. It also never hurts to have an Epipen (or 2) around, just in case of a severe reaction.  Ironically, though, Epipens do contain sulfites as preservatives!

How are sulfites metabolized?

Sulfite Metabolic Pathway (from


Update January 2014: Since writing this post last spring I discovered that my sulfite intolerance is the result of an immune system disorder called mast cell activation syndrome (MCAS) and I have since started on a treatment regimen.  Please see my recent post on MCAS for more details. Thank you.


1. This is hands-down the most comprehensive resource out there for those who are suffering with sulfite issues.

2. “Allergies and Sulfite Sensitivity.” 2012.

3. American Academy of Nutrition and Dietetics Nutrition Care Manual (accessed 8/10/12)

*Also, a quick reminder that this is a blog. I am summarizing medical literature, but also adding in my own thoughts and opinions on what I have read. I am not trying to tell anyone what they should do for their own health, nor am I giving medical advice through this page. Thank you!

51 thoughts on “Happy Sulfite Intolerance

  1. Kristin

    Thank you for sharing this information. I have had this ‘sulfite intolerance’ for just about as long as I have had Celiac Disease… but never realized how many things actually have sulfites in them. I have had strong reactions to wines… so I have had to cut wine from my diet completely. I also have to read GF beers & cider labels carefully for ‘sulfite’ information. I haven’t seemed to react to too many other foods with sulfites in them (other than protein bars – they must have a higher than normal amount of sulfites in them?) Anyway, thanks again for the resource information.

    1. Jess Post author

      Hi Kristin,
      There really seem to be more and more of us with this same problem. There is actually a Facebook group devoted to sulfite allergies/intolerances and it seems like the bulk of us are females in our mid 20s to mid 50s who have either Celiac Disease, non celiac gluten sensitivity, or I.B.S. The sulfite issues must be somehow related to our gut health, but there is so little information out there about this problem. Soy protein is pretty high in naturally occurring sulfites, so if the protein bars you cannot tolerate have soy protein in them, then it is probably a sulfite thing.
      My sulfite sensitivity has waxed and waned over the last year and seems to be connected to my GI system functioning. In the weeks following gluten contamination I am more sensitive to sulfites than at other times.
      Have you been able to find a GF beer or cider that does not have the “contains sulfites” warning? I do miss Angry Orchard and New Grist and New Planet. I am not a big drinker, but do like to be able to have a drink once in a while.

      1. Sheila Thomas

        I’ve had good luck with the Peak Organic IPA and others in their lineup. Technically anything with a legitimate German purity law sticker should also be safe. With those I may have one and not test limits in the event the brewery was purchased by less honest labelers.

        I am almost 56 years old and had my first sulfite reaction at age 10. While I did everything I could to eliminate reactive foods as discovered, I still had no idea as to what was affecting me. Not until I started going to the wonderful Dr Lisa C. Kaufman did I have have medical support. Twenty years ago she acknowledged the possibility of such, but admitted that western medicine hadn’t a cure. But I noticed as I had reactions to medications she fiendishly researched new scrips for me.

        I had exercise induced asthma at worse, but the migraines, IBS, fog brain (in a profession where I’m paid to think as are you), vomiting, swelling, extreme fatigue and a creepy gray pallor. The other common symptoms exist but pale in comparison, though the urinary tract swelling exacerbates blood pressure issues. Sadly we’ve not found a fully sulfite free diuretic.

        When I found the “Allergy Sourcebook”, I found the first worthy indicators to a productive life. By then my doctor had suggested B-12, an H-1 and H-2 inhibitors. While the trio vastly improved my quality of life, nothing came close to making me feel human until molybedum. It’s not a panacea but with the daily combo above, I’ve had far better attendance in both work and life.

        I don’t want to be disabled and eat as organically as possible. But a spate of recent layoffs has left me unable to eat as I wish.

  2. Ellie

    Hi there,

    I was just diagnosed with latent celiac disease. I have known that I have a sulphite intolerence for a few years now and I do fairly well staying off of sulphites. It does not cause asthma in me, instead I get head aches and/or my face puffs up. If I eat enough my body retains a good 4-6 pounds of water overnight. I recently started eating kind bars, the version without dried fruits or coconut. I understand that those with dried fruit would have sulphites in them but do you think the fruitless bars have them as well?

    1. Jess Post author

      Hi Ellie,
      Thanks for writing. I am sorry to hear about your latent celiac disease diagnosis, but you are definitely not alone. I have interacted with tons of women online who have both a sulfite intolerance and either celiac disease and/or IBS triggered by gluten.
      The last I checked, the non fruit and coconut KIND bars contained soy protein (soy has a high load of naturally occurring sulfites) with the exception of the Almond Cashew and Flax seed one. I have not been brave enough to try it because I am rather sulfite sensitive, but perhaps it’s okay? Also, a lot of us on the sulfitesnomore Facebook group have experienced improvement in symptoms with probiotcs and Molybedenum suppplements.
      All the best and thank you for reading!

  3. Pingback: Celiac Disease and Multiple Food Intolerances | The Patient Celiac

  4. Nicholas


    I am a very sensitive celiac who is being treated for other metabolic issues related to weight loss. In the course of treatment, I began to experience asthma-like issues which developed to throat-constricting anaphylactic shock symptoms. By process of elimination, we discovered it was the alpha lipoic acid (ALA) I was taking twice a day.

    ALA is an organosulphur compound, and in my case was acting as a chelating agent for mercury in my system. A short course of chlorella triggered a different set of debilitating symptoms consistent with mercury reactions, as well. I found your site because I was searching for ‘celiac’ and ‘sulfites’, and also ‘celiac’ and ‘mercury’.

    For a long time I was having problems with red wines, until I found a couple of organic wines made without sulfites which don’t bother me. Anyway, I just wanted to mention the parallel connection to sulfur and sulfites – in addition to an outright sensitivity, there is the possibility that these compounds may be acting as cheating agents, and that some of the reactions may be to the mercury being released by them.

    Nick E.

    PS: Thanks for the great blog!

    1. Jess Post author

      Hi Nick,
      Thank you for taking the time to comment and share your story. I will admit that I had never given a thought to the fact that chelation may be involved in all of this. Do you have any references and/or links to web sites regarding this that I (and others) could check out? Did you have mercury levels in your blood measured?
      I am glad to hear that you figured this out for yourself. I am continually surprised by how differently all of our bodies react to different stresses/medications.

  5. Pingback: Mast Cell Activation Syndrome Madness | The Patient Celiac

  6. Thea

    Sulfite sensitivity can be due to genetic anomalies in the methylation/sulfation process of our detoxification system. See Dr. Amy Yasko, Ph.D. website for explanations.

    1. Jess Post author

      Hi Thea,
      Thanks for much for sharing the information about possible MTHFR and other mutations that may lead to an inability to metabolize sulfites. Since writing this post I have learned that my sulfite allergy/intolerance stemmed from undiagnosed and untreated mast cell activation syndrome (MCAS), but perhaps some others may find some relief from following Dr. Amy Yasko’s protocol. I can say, anecdotally, that I feel like my overall health improved when I switched from taking folic acid supplementation to taking 5-methyltetrahydrofolate, which I believe is something that she often recommends.

  7. Judy

    Thank you all for the invaluable comments. I have a severe sulfite sensitivity as well as a wheat allergy. I have also become sensitive to other grains, quinoa and foods that I now know have a high level of naturally occurring sulfites. Broccoli, cabbage, etc. The reference to soy having a high level of naturally occurring sulfites was new to me as I am also seen allergic to soy. Does any one know where a good trusted food list for naturally occurring sulfites can be found? For example would peanuts be on the list? Would love to be more informed about if a person is sensitive to a food because of the natural sulfites (soy), does that mean they are sensitive to all legumes?

    1. Jess Post author

      Hi Judy,
      Thank you for stopping by. I have not been back to this page for a while, but since writing this last year I learned that my sulfite intolerance/allergy is a result of an immune system disorder called mast cell activation syndrome (MCAS). If you go to the main page of my blog, I just wrote about it my experiences with MCAS earlier this month (January 2014).
      Because of this, I have been less active in my reading and research about sulfite issues, but as far as I know, Tracy’s website Hold the Sulfites ( is still one of the best resources out there. That being said, if you have issues with sulfites and wheat and soy, then it may be worthwhile to check into the possibility of MCAS. I hope that this helps!

  8. Karen

    I like Badger Mountain Chardonnay very much, they have a variety of USDA Organic wines. Although I can’t find it in any local stores, I did ask them all if they could get the wine, and one of them has a distributor from which they can order the Badger Mountain. I hope this helps you!


    1. Jess Post author

      Hi Karen,
      Yes, I’ve had Badger Mountain too. Although it’s not available to me locally, I’ve found it at several Whole Foods while traveling through the US.
      I haven’t been too active with discussing my sulfite intolerance as my symptoms have improved dramatically since starting on treatment for overactive mast cells last year, but I do stick to sulfite free wines and ciders only.
      Thanks for your help and sharing!

  9. kristina

    Greens gluten free triple blonde ale has 0ppm sulfites! I called and asked and it is labeled as such! Strong beer too! I am terribly sulfite intolerant. Many trips to the er. This beer does not trigger me. I was so happy to find something i could drink!

    1. Jess Post author

      Thank you for the suggestion. I haven’t seen Green’s locally, but I know that they have it where I’ll be traveling later this week.
      I will definitely check it out. I’m not a huge drinker, but it is nice to have a GF beer every once in a while.

    1. Jess Post author

      Hi Marnie,
      Thanks so much for writing. I had 23andme testing done about 1 year after I discovered my sulfite issues, and I do not have any of the MTHFR, CBS, or SUOX mutations. I used Genetic Genie to analyze all of my raw data, which was really helpful. As far as I know, MCAS has not been shown to be related to any of these mutations either, but there are some other genetic mutations that may be implicated in MCAS. As my life settles down in the next few months, I hope to be able to write more about MCAS and some of the latest research regarding it.
      Thanks so much for sharing the link.

  10. Holly

    I discovered I was sensitive to sulfites about 3 years ago, but it was about a 6 year miserable journey to get there! I have asthma, wheezing, stiff/sore joints and horrible headaches if I really do myself in. Now that I am aware of what to avoid, I just suffer from mild to severe headaches. I have noticed that my sensitivity seems to be in overdrive during my hormone shifts in my cycle. Am I crazy or is there a reason for this?

    Also, I have tried the sulfite free wine and had success once and suffered the second time. How many glasses can you tolerate in a 48 hour period? I drink nothing but water (from our tap only) and coffee. I so miss having options to drink, but I have gotten used to it for the most part. Is there any suggestions for what you find “safe” to drink?

    Last question: You mentioned that generic acetaminophens have sulfites. Would this include Tylenol? I know if I take anything with NSAID on the label, I’ve got problems.

    Thanks for all the posts. Without the internet and people sharing their experiences, I would still be absolutely miserable!

    1. Jess Post author

      Hi Holly,
      Thanks for stopping by.
      Yes, my sulfite issues seem to be somehow related to my menstrual cycles too. I most sensitive the weeks before and after my period. I have no idea why this is.
      The most sulfite free wine that I can drink at one time is about one glass, as if I drink more than that much I still feel like my MCAS flares up. I have had the best luck, from a sulfite standpoint, drinking some of the GF beers. I can also tolerate vodka and sake (both sulfite free) but do not like the taste of either. Outside of that I drink mainly water and coffee and will have an occasional cup of tea.
      I have found sodium metabisulfite in generic, OTC painkillers, including aceteminophen but it is always listed as an ingredient.I have definitely seen it in some NSAIDS when I’ve done label reading.
      I hope this helps.
      Please keep the questions coming, and please know you are not crazy (but I know how it feels to be in the position of questioning yourself).

      1. Marble

        I have found that Kettle one vodka and club soda with A fresh real lime is my magic combo.

        Tonic has sulfites as does lime juice (as you probably know) but club soda I think is okay.

  11. Jesse Green

    Hi, I just found this site from google. I’m a 26 year old guy. I just drank a Angry Orchard Apple Cider. within minutes my throat/chest felt like it was seizing/choking/cramping. I’m guessing its from sulfites? I’ve had this problem on and off for about a year. I couldn’t figure out what was wrong. it was usually after eating but it seemed very random. some of my other symptoms are joints hurting, fatigue and I’ve also had canker sores since my teens, though i’ll go months without them and randomly have an “attack” and break out for weeks. I’m wondering about gluten, but it doesn’t seem to have an immediate effects.
    Any thoughts?

    1. Jess Post author

      Hi Jesse,
      It sounds like you’ve figured out the sulfite issue on your own. If you have any question at all about gluten intolerance/celiac (I’ve met many, including myself that seem to have sulfite issues secondary to celiac disease), then I recommend that you get tested for celiac ASAP, while you still have some gluten in your diet. Although many with celiac disease get sick within a few hours from gluten, others have a delay of up to several days before their autoimmune symptoms start up.
      I just read a study where 18% of undiagnosed celiacs had recurrent canker sores.
      Hope this helps! Also, there are a few sulfite free ciders out there, as well as wines and beers. Good luck!

  12. Kitty Miller

    Hi I came upon your blog when I was suffering from yet another bloating attack which in the past when severe caused my bowel obstruction. I also figured out that I had a sulfite allergy in addition to my celiac disease. The only beer I have found that is gluten and sulfite free is called “New Grist”. It takes pretty good. I couldn’t drink for over 14 years so I only have one on occasion but I thought you may want to know. I am still trying to figure out why I am getting these bloating attacks when I don’t eat much and during the day I generally drink fresh cold pressed juice with no preservatives. Thank you for your blog and I will be an avid reader in the future! Thx Kitty Miller

    1. Jess Post author

      Hi Kitty,
      Thank you for your kind words. I am glad that you found my page.
      I have tried New Grist and I’ve also been able to drink Bard’s GF beer without any reactions.
      Please feel free to ask questions and/or post comments at any time.
      I hope that you start to feel better soon.

  13. Candy

    YOu might want to look into histamine problems. Sulfite releases histamine in the body. I thought I was having a sulfite problem but now it seems that it is really a histamine problem and that estrogen levels play a part in this also. There is great info on this. the menopause-histamine site, low histamine chef, and many others. IT may be the key to a lot of things.

  14. Jodi

    I also have a sulfite intolerance. Remember that starches contain sulfite, due to the roll of sulfite in the extraction process of the starch. Before I knew about my sulfite intolerance I had noticed symptoms after eating GF foods (made primarily of starches). I had stopped eating GF foods (baking mixes etc) two years prior to finding out about the intolerance. Also, “sulfite free” wines contain 10ppm (parts per million) or less of sulfite. Unfortunately, this means that if you are drinking “sulfite free” wine or beer, you may be increasing your intolerance by exposure….that’s what happened to me. I was able to drink s-free wine for a while and then one day, while drinking the same wine that I had been, I became wheezy etc. It could have been that batch / bottle, as sulfite content can grow after bottling – Further fermentation generally continues inside the bottle…either way, I chose to just stop drinking it.

    1. Karen

      Jodi, I’m glad you posted – I believe I am at the point where I also have to accept the fact that I can no longer have sulfite-free (organic) wines without a reaction, which is usually my asthma acting up a bit. Thanks for your post, I guess it’s time to simply cut back on wine!

      1. Kasia Hicks

        Karen, please be very very careful. Sulfites are in so many things…like garlic (4ppm) which is enough for me to react. Please read the info as you must cut out the wine, not cut back. I entered the emergency room blue in the face with 4 kids that call me mom, please cut the wine out of your diet and don’t learn the hard way.

  15. Candy

    I find it interesting that celiac symptoms seem to correlate with symptom of pyroluria. It is a little know problem that seems to hold some keys to a lot of what ails folks. Sure wish the medical community would get a handle on this.

    Caught your comment about Mast Cell issues. I have made the connection from sulfites to histamine too as I mentioned in an earlier post. Just can’t figure out how to confirm it.

    Limiting everything we eat, which is not what I think we were designed for sure seems like a recipe in depression and anxiety let alone poor nutrition. I’ve tried a lot of things, low histamine, low sulfur, etc and you find you can’t eat anything but carbohydrates and begin gaining weight and you are miserable. Someone has to figure this out and I think it gets to the GUT. Drugs and things that we have taken or eaten have done this to us and we have to figure out how to undue it.

  16. Mary M

    Thanks for the great info. I was diagnosed with “mild” Crohn’s in 2012. The main trigger is gluten. It seems now that I’m quiet sensitive to sulfites. With avoidance, my thyroid medication had to be reduced several times to almost half of my highest dosage. (38 years of Hoshimotos) I’m concerned about sulfites in my thyroid medication (Levothyroxine, at least there’s no gluten in it) Do you have any suggestion? Thanks.

    1. Jess Post author

      Hi Mary,
      I am sorry to hear that you have these intolerances.
      I am also on Levothyroxine and I have taken the generic brand Lannett the last few years without any problems.
      I hope this helps. Also, just as an FYI, my sulfite sensitivity has improved tremendously since being diagnosed and treated for mast cell activation syndrome.

  17. Mary M

    Hi Jess,

    I went to a specialist today and she suspects a mast cell disorder. My GP did and gave me gastrocrom but it wasn’t effective at the time. The specialist said if the system was overwhelmed then it wouldn’t do much good by itself. She’s going to do some more tests. In the mean time, I’m vitamin B-12 and D deficient, so I’m going to supplement that. Benadryl if needed and an epi pen for emergencies. I ate a very ripe mango before realizing the foods I was reacting to were high in histamine. Very scary. I now know what to avoid and how to prepare food to minimize my exposure. Thanks for the blog.

  18. Kriz Crane

    I also have a severe gluten and sulfite intolerance and my symptoms from sulfites are an itchy rash, immune deficiency, mal-nutrition, dizziness, trouble breathing and afib. I tried the molybdenum and the other supplements and they didn’t help at all. After 5 trips to the ER and them not having a clue, I went to my doctor during a reaction with afib and my tests showed a phosphorus deficiency so now when I get the itchy rash, I know I’ve gotten sulfites and the afib is coming. I make sure to get magnesium citrate, potassium citrate and homeopathic phosphorus 1m and no more afib. While it doesn’t stop my other reactions, it helps me deal with heart issues so that I can workout. I know others have different reactions but maybe information can help someone with the same reaction or maybe it can even help with the anaphylaxis. Just wanted to share my findings.

    I also wanted to say I am on thyroid meds as well and they have to be compounded because most do contain sulfites. There are many compounding pharmacies around and they are not too expensive, maybe Mary can try that if your brand still makes her sick.

    One more thing, I have found that Wallaby brand kefir (which I make my whey protein from) and Wallaby yogurt do not contain sulfites or gluten and as far as supplements, I have found pure encapsulations has many Bvitamins and minerals, etc. which do not contain gluten or sulfites but the gelatin capsules do have sulfites so I put all of mine into sulfite free kosher gelatin capsules. I hope my info helps someone.

    Thank you for your information and your website!


  19. David Stapleton

    Hi Jess, I suffer sever migraines following consumption of anything with sulphites in them. However, recently I came across a product that contains permolybdate which is a molecule made of hydrogen peroxide and molybdate. When you add this to wine for example it neutralises the sulphites within 30 seconds making the wine headache free! The company is called UBFree ( I also use it for commercial lime juice, lime cordial and vinegars without any headaches and I have many friends who used to get bad asthma attacks after drinking wine but not anymore with UBFree.

    Worth a go I think.

    Keep up the good work,


  20. julie

    Harpoon hard cider has no sulfate and extremely low carbonation. It’s the only cider/ beer I can even swallow ( literally). Idk what is wrong with me but have Extreme intolerance to many things…

  21. Kriz Crane

    Sulfites are different than sulfates, a lot of people confuse them, like s dentist I thankfully didn’t go to! Is your intolerance to sulfates, sulfur, sulphur, sulfa? If so that is different than sulfites, meta bi sulfite, potassium bi sulfite, all different from sulfate, they are preservatives. Some people do have an intolerance to both.

  22. Kasia Hicks

    It not easy being intolerant of shrimp, wheat and soy and then to have serious sulfite and nut allergy on top if it. Well I got my results back from 23 and me and I have celiac!!! It all makes sense now. Its been 3 years and 4 anaphylactic shock scenarios with several hospital visits to make sense of what is happening to by body. I do not have asthma and thus had to seek a second option and be tested in the hospital for sulfite allergy. I carry an epipen always. Hold the sulphites website has been extremly helpful and now this site too is a life saver, literally.

    so the question is what do I eat??

    1. Jess Post author

      Hi Kasia,

      I can empathize with how difficult of a journey you have been on and I also know how difficult it can be to try to put all of the pieces together. I agree with the hold the sulfites website as being a great resource.
      I’ve had the 23 and me testing as well. It shows whether or not a person has the genes that are associated with celiac (HLA-DQ2 and/or DQ8) but just because you have the genes, it does not necessarily mean you have celiac disease (most people who have the genes do not have celiac). I just needed to clarify this for anyone who may read this in the future.

      Thank you.


    2. theresa

      Hello Kasia,

      Did you know wheat, soy and nuts contain Methionine a sulfur containing amio acid.
      “Metabolism of sulfur-containing amino acids also result in the production of sulfite, but the enzyme sulfite oxidase, present in tissue, detoxifies sulfites by oxidizing them into sulfates.”

      Also baking powder contains sulfites (baking powder = bicarb + cream of tar tar). Cream of tar tar is a by product of the wine making industry. Some starches tapioca and corn/maize starch are sulfited to stop clumping.

      Check out this website: (talks about the enzyme sulfite oxidase and what it needs)

      Hint molybdenum needs heme iron to function. Vitamin C is good for Iron absorpbtion.

      Eat low methionine. ( liver is high in heme iron) Apples are low in methionine
      My son has an allergy :)
      Good luck and happy reading

      Theresa :)

  23. Craig

    The Band LoCash make a wine called Shipwrecked. It is gluten and sulfite free. Happy drinking everyone! They make a white and a red.

  24. Natalia

    I found this article because I was googling potassium citrate and mast cell disease. Apparently potassium citrate is somewhere in the comments but oh well I couldn’t find it. I wanted to tell you though I have Mast Cell disease and sulfite intolerance and I eat wheat free (I don’t tolerate wheat but I don’t have celiac so I can eat things like rye bread) and I noticed under the products you like you have against the grain baguettes (probably a bunch of other stuff on there has sulfites in it too but I particularly noticed them because I went into Anaphalaxis from their super tasty artisan rolls). They put bleached tapioca flour in so many of their products (maybe all of them) and that’s not good for anyone if they have a sulfite allergy. I have a decent sized sulfite threshold but bleached tapioca flour nearly kills me. I can even eat donuts from regular bleached flour on occasion without a reaction but I ate tapioca donuts from the healthfood store and it was just so bad. I can eat Bob’s red mill tapioca flour though because it’s totally sulfite free (this is how I learned it was the sulfites and not the tapioca). I called the company and they said all of their products are sulfite free. My point is it’s really important to watch out for the gluten free pre packaged stuff from the healthfood store if you have a sulfite allergy. Also I noticed on your list molasses is there but if you have sulfite issues there’s always unsulphered molasses (I’ve never reacted to molasses anyways but I’m sure I could so I eat the unsulphered kind).

  25. Lisa

    Which bottled waters are safe for you? Which bottled waters are not safe? I need help I am having trouble with water too. Please any help would be appreciated.

    1. Jess Post author

      Hi Lisa,

      When I was at the height of my sulfite intolerance I lived on Crystal Mountain. I bought shopping carts of the gallon sized containers of it at Dollar Tree.
      I also had good luck with Poland Spring as well.

      1. Lisa

        Also, by Crystal Mountain did you mean Crystal Geyser? Because I have heard of Crystal Geyser. I found the Crystal Geyser gallon on Dollar Tree’s website.

  26. Mary

    Hi there,

    I’m wondering what the shelf life is like for sulfite free red wine? I have a bottle and the vintage date is a few years old. I’m wondering if it goes bad faster than typical wine but also could yeast and bacteria grow/increase over time in sulfite free wines??? That would obviously not be good for us with ibd. Please help — thanks!!

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